Praying for a Miracle...
 Hoping for a cure...
Fighting for a chance for Alex
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Photos

 

What an honor...we met Dr. Dravet!!!!! (August 2010)



Meeting Sky




Alex and Sky Bonding

Finally Alex gets to have some fun too! Usually pools are unsafe for Alex because any change in his core temperate causes him to have a seizure. Any indoor heated pool is the only way to go!

18th Annual Bruce Cole Dinner sponsored by the Fairfield Conservation and Sportsman Association. Alex was the Guest of Honor!



48 hour EEG at home

EEG at MonteFiore Hospital in NY









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